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West Midlands Breast Screening Programme

The Breast Cancer Clinical Outcome Measures (BCCOM) Project

The BCCOM Project Year 1:
Primary symptomatic breast cancers diagnosed in 2002 were eligible for inclusion. Data obtained from cancer registries on each case included basic demographic details, diagnostic information, tumour characteristics and the type of surgical and adjuvant treatment.

To validate this mechanism of data collection, cancer registries sent to consultant surgeons the data held on patients under their care. The surgeons in turn checked the validity of their data by comparing them with those held on local systems, made amendments if necessary and returned the data (minus the patient identifiable details) to the WMCIU. Assistance of MDT co-ordinators to check the data was often enlisted, as well as contributions from some cancer networks. Surgeons could also submit unchecked data if they did not have the necessary support mechanisms in house to undertake this task.

Data were received from 11 cancer registries incorporating 191 consultant surgeons who contributed a total of 16,407 cases. 49% of surgeons checked or partly checked their data [BCCOM Year 1 Annual Report.pdf]. This represents a tremendous achievement by UK cancer registries and ABS at BASO surgeons. In addition, the collaboration between cancer registries and their local surgeons stimulated by the BCCOM Project has resulted in new ways to improve the data collection process being agreed and this should result in further improvements in data quality in subsequent rounds.
BCCOM Year 1 results were presented at the ABS at BASO conference (Birmingham, 11 May 2005) and at the UKACR conference (Manchester, 28-29 September 2005).

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